There are many organizations which make managing yours or your family member's bleeding disorder a bit easier. We are here for you!
Albany Medical Center offers top treatment options and community resources for patients and families living with hemophilia, von Willebrand's disease, and other rare factor deficiencies.
The HFA serves as a consumer advocate for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, and availability of the products the individuals of this community require.
The NHF provides information pertaining to bleeding disorders (including hemophilia, von Willebrand Disease, Factor VII, and Factor XI deficiencies), legislative advocacy, research (gene therapy), conferences, etc. Including Steps for Living and Victory For Women.
An international organization dedicated to individuals with hemophilia worldwide.
The Canadian Hemophilia Society addresses the symptoms, diagnosis, and treatment of bleeding disorders including hemophilia, von Willebrand Disease, and other coagulation deficiencies including platelet function disorders. Excellent diagram depicting normal clot formation.
The BDA News is a quarterly newsletter that is sent out via email to our community. Learn more about bleeding disorders and opportunities in our area. Sign up for our newsletter here: